Cheap Albums 4.17.12

6a00d83451e0d569e200e54f9e17928834-800wi

Music Monday 4.16.12

Ipod toon

STREAMING FREE

BURNING UP MY iPOD

Check out the Tiny Desk Concert from First Aid Kit (album, The Lion's Roar). You won't be sorry. When they harmonize = wow. Also, follow along the lyrics to the second song, "The Lion's Roar." It appears to be their response to & reflection on church, religion, Jesus, Christianity. 

Molly & Chiari Update 4.12.12

Molly profile pic

Update 4.13: Molly slept terrible last night. Terrible. She is exhausted. She saw her neurologist today. He is trying to manage her sleep, or lack thereof, and we have no idea whether it will work. Nothing has helped so far. We should know in a couple days. I'm not sure I've seen her this frustrated over her health since 2008. Thanks for continued prayers.

-----

Brief update (4.12): Molly had about 5 better days in a row after some significant time off of her part-time job at the school and a lot of rest. Still not great, but better. More functional in daily life. Some of her brain fog issues have gone away for the most part, though she has remained easily exhausted.

The last two days things have turned worse again. She's barely sleeping, and we can't figure out why. We assume it's making symptoms much worse. It's been linked to times of increased symptoms in the past. I'm taking her to her neurologist tomorrow morning in the hope he'll take this another step and figure out what, if anything, can be done.

We are hoping for answers soon. We are praying for God's help and healing, and for her to continue to place all of her hope in Christ when circumstances at times feel hopeless.

Music Monday 4.9.12

67010

STREAMING FREE

SALE ALBUMS

Shearwater | "You As You Were" (Lyrics)

Molly & Chiari Update 4.5.12

Chiari ribbon

MRIs

Molly's neurosurgeon has now seen her new battery of MRIs. He says from a surgical perspective, there isn't anything wrong. Spinal fluid flow is excellent. Decompression (space created for flow from first surgery) is still good. They thought a lumbar puncture (spinal tap) might help if there is increased pressure from too much fluid, but she's had that looked at twice in the past and it's never been an issue.

They don't really have any suggestions otherwise. It's basically out of their hands. And that means we don't have reason to believe surgery of any sort is even a thought, at this point.

So for the moment we are keeping with the strategy Molly's neurologist has in place to relieve some of the intense & overwhelming reactions Molly is having to everyday things through some medication. So far they seem to be helping. It may just be that life is a bit more intense for her, and we just deal with the symptoms. It may be that over time the symptoms will subside, and we are certainly hoping that will happen.

MOLLY

As I said, Molly is having some positive reaction to some medicine she recently started. I can say that clearly the last three days have been significantly better than the last 30-40 days. She has more energy, though it's still not anywhere near normal. Yesterday we went shopping at Wal-Mart to see how she would react. She was better than weeks ago, but after coming hope fell asleep on the couch. 

Today, Molly went to work. So far she is a little overwhelmed, but seems to be dealing with it ok the last I heard. She is going to call in a bit during her lunchtime to let me know how she's doing.

We are encouraged by the last few days, but still very concerned and guarding her time until we see if this is a genuine turn toward the better. 

OTHER

Our church and community has been so generous. We've eaten well as many meals have been provided for us. Bags and bags of groceries have been bought and brought to us. Steaks for the grill are marinading in the fridge as I type. We are blessed and thankful for the many local friends who have helped so much.

We are overwhelmed with the many who have prayed, called, written notes and emails, given gift cards, and blessed both locally and from afar. We love all of you and you have made this difficult time more bearable. We don't know if we may be seeing a light at the end of this tunnel for Molly's struggles or if things could turn worse again. But we know you all have our back, and we are very, very thankful.

Last word for now: We have seen our kids learn to pray and trust God better during this time. God has been good to us and is teaching us a lot. I want to talk more about that, but I'm not ready to yet. And we are confident that He will continue to bless Molly and our family far beyond our expectations. To God be all the glory. 

$5 Albums | April 2012

2795042241_0f37875786

Molly & Chiari Update 3.26.12

Molly dr appt 3.26.12

As we continue to wait for some news of Molly's MRIs from her neurosurgeon, we decided it would be good today to have her see her local physician. She got to see Molly's symptoms in full bloom. Really bad. Lots of tension, emotion, frustration. But those things helped her doctor to see all that's wrong and the need to do more.

Molly had a blood test to check a number of things. Her neurosurgeon thinks it's possible there are other issues that are making her symptoms worse. It's at least worth a try.

Molly now has a neurologist appointment tomorrow at 11:20am. We are hoping that will offer some answers, or at least get some fresh eyes on her problems and see what comes of it. 

Just trying to keep everyone in the loop. Thanks for your prayers! Many local friends have been generous and supportive. Very thankful for that.

Side Note: Notice in the picture how Molly is gripping her knees tightly with her hands. She didn't know I was taking this, but she is continually experiencing that kind of physical tension and mostly can't help it. Thought it might be helpful for you to see something like that, which I didn't notice until after I took the picture. Also note, the room was decorated in Cubs paraphernalia, which means she's doomed to at least 100 years of frustration. :)

Music Monday 3.26.12

3928948071_6a4b321c39

CHEAP ($3.99, sale ends any moment!)

STREAMING FREE

$5 ALBUMS

Only a few days left for some great $5 albums

HOT ON MY iPOD

Cheap Kindle Books 3.25.12

Kindle

Kindle has some good, cheap books out right now. Buy a Kindle ($79), Kindle Touch ($99), or Kindle Fire ($199). Or simply get a free Kindle app to read these books for cheap!

Molly & Chiari Update 3.21.12

IMAG0016-1 (1)

MEDICAL

Molly had her MRIs done on Friday at the University of Wisconsin Hospital. They went relatively quickly, but it was a long day. Saturday we mailed the CD of the imaging to Dr. Frim at the University of Chicago Hospital. Hoping to hear from him today or tomorrow. I'll update when we know something.

MOLLY

As best as we can remember, the last 10 days have been the worst stretch of the worst symptoms ever for Molly, including the weeks leading up to her previous surgeries. Mentally for her this has been really difficult. She almost never finishes a sentence or thought without significant pauses to gather her thoughts. About half the time she just gives up trying to say it. 

She has very little balance. Extreme fatigue and weakness. She was so bad on Monday that when she got to work (part-time at local elementary school) a couple of friends in the school office saw how bad she was doing and had to drive her home. She's probably done driving unless things improve. She pretty much never walks anywhere unless she has something to help keep her balance. She's almost fallen a couple of times. 

As a whole, life itself is very overwhelming for her. Just leaving the house and being around anything that isn't very familiar causes her great mental stress and leads to physical tension. Her whole body will tense up very tight and see has difficulty stopping it. It's an internal reaction to things she can't control. 

With a couple of days off of work and staying home more, she's at least feeling a little less tension. The symptoms are still there, and she's very emotional. But we hope a rest might help.

ME

I'll be honest. I feel very frustrated. It's tough looking at my beautiful wife and see so much pain and frustration and sadness in her eyes. It's tough seeing her struggle to say even a simple thought. It was painful last week to see her near meltdown in a grocery store. I had to spend several hours last week dealing with doctors & insurance & hospitals on the phone and email because the hospital required something unnecessary from our insurance company. It was a total mess. In the end we got it straightened out. And I'm sure it was a simple mistake. But it made my week miserable.

GOD

We can't help but wonder about these difficulties and what God is doing. The things we are working on most in our church are the things we are finding most complicated now with Molly's needs and struggles. Spending time with others, even those we know the best at Doxa, is great strain and increases her tension, quickly leading to exhaustion and other symptoms. The spiritual warfare aspect of this seems clear. It's changing the way I'm praying.

We continue to talk and pray together about the goodness of God, His ability to heal and our request that He would heal Molly, and His power made perfect in weakness and the possibility of the weakness remaining rather than being taken away.

If you would, say a prayer for Molly and our family.

Anais Mitchell | "Coming Down"

One of my favorite new albums comes from one of my artist discoveries of 2012, Anais Mitchell: Young Man In America. The reviews are remarkable. The video for "Coming Down" (below) shows how Anais can write a very simple song that makes you feel so much. She's a storyteller, & the video is gorgeous with real NPR's explanation is very helpful. I've already gone back to pick up her also well-reviewed Hadestown, which also features artists like Justin Vernon (Bon Iver) & Ani DiFranco.

Music Monday 3.12.12

Musicmonday 470 graphic CAPS2

CHEAP

STREAMING FREE

BURNING UP MY iPOD

PLNTD Conference: Cultivating Gospel Communities

3x7

At the end of March (March 30-31), the PLNTD Network is hosting a great training event in South Florida focused on cultivating gospel communities. Steve Timmis and Jared Wilson are scheduled to speak, and there will be breakout sessions as well as Q&A to discuss and consider contextual application to your local church.

Get the details (schedule, location, hotel, reservations) by going to the conference website. Current registration for the conference is $49, but PLNTD has a special promotional code for Reformissionary readers. Get $10 off that price when you put "mccoy" in the promotional code slot as you register.

Here's a description of the conference from their website:

God has given the church a mission. At the very heart of that mission is the call to make disciples. And at the very heart of making disciples is gospel communities on mission.

The PLNTD conference : Cultivating Gospel Communities

is a training event focused on equipping God's people to engage in the mission of the church in ordinary life with gospel intentionality. The gospel is extraordinary good news, and communities formed and fueled by the gospel are persuasive displays of how life-transforming and kingdom-advancing it really is. During these two days, we will pursue ways to communicate in word and commend in deed the gospel to our neighbors as we pray for a move of God that impacts our cities for Christ.

Who should attend this training event?

Anyone who wants to make, mature, and multiply gospel-centered disciples. Pastors, church planters, small group leaders, and ministry apprentices/interns are strongly encouraged to attend. For those in South Florida, you will also hear about new developments to collaborate for kingdom advance through the formation of a regional network. There is no better time to get in the trenches and scatter the gospel seed than now! We hope you'll join us!

Sounds great! Hope many will get to go. When you get there, give Timmy Brister a big kiss from me. Actually, a hug will do. :)

PLNTD Conference: Cultivating Gospel Communities

Plntd

At the end of March (March 30-31), the PLNTD Network is hosting a great training event in South Florida focused on cultivating gospel communities. Steve Timmis and Jared Wilson are scheduled to speak, and there will be breakout sessions as well as Q&A to discuss and consider contextual application to your local church.

Get the details (schedule, location, hotel, reservations) by going to the conference website. Current registration for the conference is $49, but PLNTD has a special promotional code for Reformissionary readers. Get $10 off that price when you put "mccoy" in the promotional code slot as you register.

Here's a description of the conference from their website:

God has given the church a mission. At the very heart of that mission is the call to make disciples. And at the very heart of making disciples is gospel communities on mission.

The PLNTD conference : Cultivating Gospel Communities

is a training event focused on equipping God's people to engage in the mission of the church in ordinary life with gospel intentionality. The gospel is extraordinary good news, and communities formed and fueled by the gospel are persuasive displays of how life-transforming and kingdom-advancing it really is. During these two days, we will pursue ways to communicate in word and commend in deed the gospel to our neighbors as we pray for a move of God that impacts our cities for Christ.

Who should attend this training event?

Anyone who wants to make, mature, and multiply gospel-centered disciples. Pastors, church planters, small group leaders, and ministry apprentices/interns are strongly encouraged to attend. For those in South Florida, you will also hear about new developments to collaborate for kingdom advance through the formation of a regional network. There is no better time to get in the trenches and scatter the gospel seed than now! We hope you'll join us!

Sounds great! Hope many will get to go. When you get there, give Timmy Brister a big kiss from me. Actually, a hug will do. :)