Molly & Chiari Update 4.5.12

Chiari ribbon


Molly's neurosurgeon has now seen her new battery of MRIs. He says from a surgical perspective, there isn't anything wrong. Spinal fluid flow is excellent. Decompression (space created for flow from first surgery) is still good. They thought a lumbar puncture (spinal tap) might help if there is increased pressure from too much fluid, but she's had that looked at twice in the past and it's never been an issue.

They don't really have any suggestions otherwise. It's basically out of their hands. And that means we don't have reason to believe surgery of any sort is even a thought, at this point.

So for the moment we are keeping with the strategy Molly's neurologist has in place to relieve some of the intense & overwhelming reactions Molly is having to everyday things through some medication. So far they seem to be helping. It may just be that life is a bit more intense for her, and we just deal with the symptoms. It may be that over time the symptoms will subside, and we are certainly hoping that will happen.


As I said, Molly is having some positive reaction to some medicine she recently started. I can say that clearly the last three days have been significantly better than the last 30-40 days. She has more energy, though it's still not anywhere near normal. Yesterday we went shopping at Wal-Mart to see how she would react. She was better than weeks ago, but after coming hope fell asleep on the couch. 

Today, Molly went to work. So far she is a little overwhelmed, but seems to be dealing with it ok the last I heard. She is going to call in a bit during her lunchtime to let me know how she's doing.

We are encouraged by the last few days, but still very concerned and guarding her time until we see if this is a genuine turn toward the better. 


Our church and community has been so generous. We've eaten well as many meals have been provided for us. Bags and bags of groceries have been bought and brought to us. Steaks for the grill are marinading in the fridge as I type. We are blessed and thankful for the many local friends who have helped so much.

We are overwhelmed with the many who have prayed, called, written notes and emails, given gift cards, and blessed both locally and from afar. We love all of you and you have made this difficult time more bearable. We don't know if we may be seeing a light at the end of this tunnel for Molly's struggles or if things could turn worse again. But we know you all have our back, and we are very, very thankful.

Last word for now: We have seen our kids learn to pray and trust God better during this time. God has been good to us and is teaching us a lot. I want to talk more about that, but I'm not ready to yet. And we are confident that He will continue to bless Molly and our family far beyond our expectations. To God be all the glory.