This is a heavy weight on our family and we feel the level of commitment this is going to take. But more than anything we are eager and excited to get started. Dr. Brown showed us a growth chart of another patient he saw yesterday (without the personal info, of course) and showed the massive height and weight growth after treatment with Remicade. Dr. Brown walked into the examination room, saw how happy and health the kid was, and told him, “I’m sorry, I have to go see a sick kid (Elijah) in the next room. You are doing great.” We could see on the doctor’s face as he told us this story how much hope he had for Elijah’s treatment. We started to borrow his enthusiasm. The other doctor in the room (Dr. Chantal Lucia-Casadonte) looked at E and said something like, “You won’t even believe how good you are going to feel.”
Now, there are other things that could happen along the way. He may not respond as hoped to the Remicade, or at some point grow an immunity to it, etc. But this is the best, the most often successful, and the fastest way to get him back to health. It’s important we start him now.
Days/Weeks/Months Ahead - We are completing a few more tests for E in the next week and working out stuff with insurance. He will start Remicade treatment as soon as we can get it scheduled, so hopefully in the next couple of weeks. We will be back at Lurie 4 times in the next 14 weeks for infusion and our next appointment with Dr. Brown will occur on the same day as the 4th infusion.
Thanks as always to our amazing church members, friends local and far away, who have been following on the blog, Twitter, Facebook, and Instagram at all we’ve been going through. We appreciate your prayers, thoughts, “Likes,” and encouragement along the way. It’s really a joy during the most difficult of moments to find so many friends who care about E and the rest of us.