Brief update after Elijah's first infusion of Remicade.
Infusion - Elijah's first infusion went great. Stayed at Ronald McDonald House (RMH) Monday night and infusion was first thing Tuesday at Lurie Children's in Chicago. Given Tylenol, Benadryl, and Remicade. Benadryl made him a grump for a bit, but the Remicade had no visible effects. Seemed to take it great. Very proud of our boy.
We took a photo next to a Lurie pillar (below) so we can track his growth with each visit, if we can remember to take the picture. :) We are believing that God and doctors and meds will get our kid healthy and growing. Praying toward that end.
Ronald McDonald House - E was a little bummed that we stayed Monday night and not Tuesday night because on Tuesday there were free tickets to Northwestern vs Michigan basketball game. More bummed to know it went to double OT!
Next Appointment - We set up next three appointments. Next one is Tuesday March 17. We got the big room at RMH the night before so we can have all six of us there and that will put us in the city for St. Patrick's Day. Big celebration is Saturday and we'll miss that, but hoping the river will still be bright green for the kids to enjoy!
Test Results & Other Health Issues - A bone scan and blood tests have shown Elijah's bones are weak and vitamin D is way too low. We knew this was possible and the doctor already had him on supplements just in case, but now we know these are real issues. He is on serious doses of vitamin D and calcium.
City & Stuff - We are trying to make these appointments fun enough to keep E encouraged. So we saw some sights Monday evening, especially noticing some architecture since E's working on a project about being an architect. He took a lot of pictures. We perused shops on the Magnificent Mile.
After the infusion and before leaving for home on Tuesday, E and I dropped Molly at the parking garage and walked in the rain for a couple of blocks to get to Do-Rite Donuts. Those are the best donuts I've ever had. And as someone who has never been a huge donut fan and NEVER go out of my way to get one, this place will get our regular business, you know, for the sake of Elijah. :) If you are in Chicago, I highly recommend finding a Do-Rite old fashioned donut.