It's been a long time since I gave an update on Molly, mostly because there has been nothing new. She has been great. That started to change a month ago.
Over the last month Molly started to experience small, though not insignificant symptoms from Chiari. Read all the old posts on Molly & Chiari. Or check out an initial post from 2007 on what Chiari I Malmformation is.) On Friday she woke with a massive headache that caused her to vomit most of the day. Late Friday that was done, but other symptoms began and were full-on. She easily loses her balance, struggles to finish thoughts (brain fog), gets easily overwhelmed, has significant muscle weakness and some numbness in her arms and legs, and more. It's been consistently bad since Friday.
That's not a long time, and she has dealt with some symptoms from time to time and had them subside. That happened last year. But it hasn't been this bad since before her last brain surgery. We still are hoping and praying for the symptoms to go away, but they are bad enough that contacting Molly's doctor was necessary.
I emailed Molly's doctor, Dr. David Frim, at the University of Chicago Hospital. He responded today and said that it's time to initiate another evaluation. We are waiting for his assistant to respond and, we assume, make an appointment for us at U of C. We don't know anything about what tests that may require (MRI, spinal tap, etc).
We have prayed for the symptoms/problem to go away, but were talking today about how God's power will be made perfect through her weakness (2 Cor 12). I'm assuming that's why she wanted me to use the above graphic for this post. :)
I'll post more when we have more info. If anyone can pray, please pray for God to be glorified through this, and to be merciful to Molly.
Also, if you can, pray for me as I will be spending a significant amount of time with her as she is losing ability to be out of the house for an extended period of time on her own. We ran errands on Monday and I don't think she could have done it without me there. This is on top of tough times in our church where money is tight and I'm busier than I've ever been. This is going to put significant strain on our family and we need His strength for all of it.
Thanks friends. We appreciate you.